Endometriosis Is Invisible and a Neglected Disease

•    40% women denied promotions in their jobs and 20% fired from their jobs due to Endometriosis

•    50% experience a decreased ability to work

•    About 66% to 75% of the total costs of endometriosis arise from reduced ability to work and not from direct costs of treatment

Endometriosis can end patient’s careers and hamper their lifestyle and  education – time to wake up and recognize it as a potential chronic disability says Dr Vimee Bindra - Endometriosis Excision Surgery Specialist, Co-Founder, Endrcrusaders and founder of Endometriosis Foundation of India

Endometriosis affects roughly 10% (190 million) of reproductive age women and girls globally and more than 25 million in India.  There is currently no known cure for endometriosis and treatment is usually aimed at controlling symptoms. Access to early diagnosis and effective treatment of endometriosis is important, but is limited in many settings, including in low- and middle-income countries.

Women suffering from endometriosis experience most commonly one or more of the following symptoms: chronic pelvic pain, severe dysmenorrhea, deep dyspareunia, pain during defecation/urination, loin pain, irregular bleeding, constipation/diarrhea, as well as reduced fertility and chronic fatigue.

Numerous and severe symptoms, chronicity of the disease, side effects of therapies as well as diagnostic delays  significantly affect women’s overall quality of life, including professional performance, and place high demands on the treating physicians. Consequently, disease symptoms, especially endometriosis-related pain and fatigue, may disturb the development and realisation of long-term goals such as a professional career and may make it difficult to meet the demands of a job. About 40% of women with endometriosis report impaired career growth due to endometriosis, and about 50% experience a decreased ability to work due to their chronic disease.

The quality of working life is a major aspect in quality of life overall, which in turn is the most important predictor of total cost of disease. About 66% to 75% of the total costs of endometriosis arise from reduced ability to work and not from direct costs of treatment.  Being able to work in a desired occupation may not only have a strong impact on a woman’s financial situation and on the perception of and attitude towards daily work, but can also be an important health factor. Unsatisfactory work and limited possibilities for change are associated with increased levels of headache, fatigue and depressed mood says Dr Vimee Bindra.

Frequent sick leave and reduced work productivity can put affected women under observation by superiors and under greater pressure to deliver full performance. The rather intimate and gender-specific nature of the most common endometriosis symptoms tends to make affected women feel embarrassed.

Hence, a better understanding of endometriosis and its impacts on any aspect of life, including professional activity, not only by medical professionals but also in society and politics would help affected women and their families to reduce the negative consequences of the disease says Dr Vimee Bindra.